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Documents: Environment Report 1999-2002
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| Gender of Participants | ||
| Gender | Number | Percent |
| Male | 102 | 67.5 |
| Female | 45 | 29.8 |
| Transgender | 4 | 2.7 |
| Total | 151 | 100.0 |
| Reported Infection Route | ||
| Risk Category | Number | Percent |
| Male, Injection Drug Use (IDU) | 55 | 36.42 |
| Male, Sex with Male (SM) | 22 | 14.57 |
| Male, SM and IDU | 4 | 2.65 |
| Female, IDU | 29 | 19.21 |
| Female, not via IDU | 16 | 10.60 |
| Transgender (SM or IDU) | 4 | 2.65 |
| Male, Sex with Female | 9 | 5.96 |
| Male, Other | 12 | 7.95 |
| Total | 151 | 100.00 |
| Median Time from Infection | ||
| Reported Transmission Route | Number | Median* Time from Seroconversion (Years) |
| Male, Sex with Male | 19 | 7 |
| Male, Injection Drug Use (IDU) | 48 | 4 |
| Female IDU | 29 | 2 |
| Female, no IDU | 13 | 2 |
| Male, Sex with Female | 9 | 2 |
| * The term "median" means that half the sample was equal to or less than the median figure and half the sample was equal to or greater than the median figure | ||
The epidemic of HIV disease is still in its early stages for First Nations persons. Persons living with HIV can be asymptomatic for many years before their immune system breaks down and they succumb to AIDS. Table 3 shows that many First Nations persons have become infected with HIV only in the last few years. This means that the highest need for care and treatment and support is still in the future.
First Nations communities will have to plan adequately to care for persons in their community who are living with HIV and AIDS. If stigma and shame remain for First Nations persons living with HIV, they may choose not to return home for care, treatment and support.
First Nations persons living with HIV in Vancouver are accessing combination drug therapies at a rate significantly lower than non-First Nations men who have sex with men. The reasons for this are not clear but will be investigated in future research.
FN-CHRP will continue analysis and attempt to identify costs unique to First Nations persons living with HIV. Future analysis will include the costs of caregiving and support from friends and family.
It will be difficult for First Nations communities to plan properly for future HIV/AIDS care, treatment and support needs if First Nations persons are hesitant to get tested. Uncertainty about the number of First Nations persons living with HIV also makes the effective prevention programs difficult to design and implement.
The BC Aboriginal HIV/AIDS Task Force released a comprehensive report in 1999 title, The Red Road, The Path to Wholeness: An Aboriginal Strategy for HIV and AIDS in BC. The recommendations are referenced in detail in the Vancouver HIV/AIDS Care Co-ordinating Committee (VH/ACCC) 1999 - 2002 Care Strategies document.
2. Other Ethnocultural and Linguistic Communities
Language barriers, different ethnocultural norms and persistent myths about HIV/AIDS have contributed to a limited awareness of risk behaviours and prevention strategies in newcomer populations. Many service providers are often unaware of the risk for HIV in different ethnic communities. It is important to recognize what may have put newcomers at risk before immigrating to BC. For example, unsafe injections during mass immunization campaigns have been cited as the main reason for transmission of HIV cases in developing countries.
Language is the largest barrier to care faced by HIV-infected persons who dont speak English. Over 50% of children in Vancouver schools come from homes where the mother tongue is not English, and over 100,000 people in the GVRD speak neither English nor French. V/RHB Community Health Services clinics, Bridge Health Clinic (serving refugees and marginalized immigrants), and most hospitals now offer care in most languages either through interpreters or the AT&T language line. Increasingly, physicians in the community who speak languages in addition to English are accepting HIV clients.
The BC Centre for Disease Control, STD Division collaborates with different ethnic communities in getting information out in their first language and, in conjunction with the Vancouver/Richmond Health Board, has published updated educational materials on HIV and other STDs in Vietnamese, Chinese, Spanish, Punjabi, Hindi, and Amharic (Ethiopian). The BCMHSS Womens Project has also translated these materials into Burmese and Khmer (Cambodian).
The street nurse program has outreach workers for STDs/HIV/AIDS who speak Spanish and Burmese. Storefront Orientation Services (SOS) located in the Downtown Eastside also provides outreach to the Spanish speaking refugees and new immigrants for HIV/AIDS services. The Asian Society for the Intervention of AIDS (ASIA) focuses on the East and Southeast Asian communities by providing education, support and advocacy to help address factors that marginalize members of these cultural groups, including HIV phobia, homophobia, racism and sexism.
Some newcomer groups believe that AIDS is a "gay disease." As a result, many women do not realize that they are at risk when they are in a monogamous heterosexual relationship. They either do not recognize that their male partners may also have sex with men, or they do not realize injection drug use is prevalent in certain sub-cultures within their communities.
Other groups are concerned about intergenerational and intercultural conflict when behavioural norms for Canadian youth are perceived as wrongful by newcomer parents. This can result in overly restrictive and/or abusive parenting that may increase the likelihood of youth leaving home and ending up on the street. There is also concern for gender and power relationships in newcomer communities and the increased risk for transmission of HIV to vulnerable partners in abusive relationships.
Since 1997, peer education/support groups have been held in the first language of women from nine different language groups through the BC Multicultural Health Services Society, Refugee and Immigrant Womens Health Project for the Prevention of STDs/HIV/AIDS. The curriculum is developed and regularly updated by representatives from each of the nine language groups. By building trust with a small group of women who meet together for eight to ten sessions, there is an opportunity for women to learn about their risks, to find personal solutions within their community, and to learn how to look outside of their cultural group for help when necessary. This program is now in the process of securing funds to develop an STD/HIV/AIDS peer education for the men in these language groups.
An additional barrier to some newcomer populations, specifically refugee claimants and those who have not yet qualified for residence status, is the lack of coverage under the Medical Services Plan. Through collaboration among the BC Centre for Excellence in HIV/AIDS, Oak Tree Clinic, BC Centre for Disease Control, V/RHB clinics, community clinics, AIDS service organizations and other non governmental organizations, there is an attempt to stretch the safety net to its maximum in order to catch those who would otherwise fall between the cracks.
In 1995, the Ministry of Health published a discussion paper on a proposed multicultural health policy framework. The paper identified key obstacles to equitable health status and access to health services in a multicultural society, including:
3. Gay Men
The BC Centre for Disease Controls Report shows that young gay and bisexual men continue to seroconvert at alarming rates [see Appendix C].
Homophobia, racism, and other forms of stereotyping and discrimination are factors contributing to gay mens vulnerability to a range of health concerns, including HIV. The impact of growing up gay in a homophobic world may hurt the development of self-acceptance and self-esteem. It may also stand in the way of development of interpersonal skills needed to respond effectively to health concerns.
The Vancouver Lymphadenopathy AIDS Study (VLAS), begun in 1982, represents the largest and longest-running study of 1,000 gay men in Canada. The Vanguard Project began in 1995 as an extension of the VLAS. These studies have examined the relationship between the social determinants of health and HIV risk and disease progress among gay men. Findings of these studies include:
The Vanguard Project, a study of HIV incidence and associated risk factors, looks at the rates at which young gay and bisexual men are becoming infected with HIV. The project examines the factors that might put young gay and bisexual men at risk for HIV, and looks at which sub-populations of the gay community are in need of particular attention. The project has found a strong correlation between early experiences of non-consensual sex and ongoing risk behaviour in adults. The study suggests that traumatic experiences early in life may discourage or prevent gay men from establishing coping skills around sex, work, where they live, and the kinds of social networks they establish. This can be particularly important when it results in difficulty negotiating relationships with partners and friends. A lack of self-acceptance, low self-esteem, and limited social support in the community can increase vulnerability to health concerns such as HIV, STDs, drug and alcohol use, anal health problems and violence in relationships.
Male sex trade workers are especially vulnerable. The Vanguard Project has found that male sex trade workers are vulnerable to HIV infection because of unfavourable living conditions, substance use and sexual risk behaviour. Unstable housing appears to place male sex trade workers at particular risk for HIV infection.
The LGBT Health Association, through the LGBT Health Care Access Project, conducted a community consultation through focus groups with community members. Most participants found local health services to be good. In particular the effectiveness of LGBT clinics at The Centre and at the Downtown Community Health Centre was noted.
However, many gay men reported that they used the health care system with caution. It was perceived that homophobia exists across the system (emergency rooms, specialists and male doctors were mentioned specifically), and this creates difficulties in accessing health care and disclosing sexual orientation, sexual practices and health concerns.
Gay or gay-friendly doctors were found to be important but difficult to find. Youth in particular reported difficulty in finding gay-friendly clinics. Access was also noted as a difficulty by gay First Nations and Latino men and gay men of colour. Gay men who are immigrants or refugees also reported a fear of disclosing sexual orientation.
Gay First Nations men and gay men of colour reported that they separated out their health concerns, bringing general concerns to their family doctor and gay-related health concerns to LGBT-specific clinics.
The groups recommended improving the health system by educating care providers about homophobia, biphobia, HIV/AIDS and racism. They also suggested expanding culturally sensitive, multilingual, LGBT-friendly service in hospitals and health care organizations.
Gay men and men who have sex with men are faced with many important issues with respect to HIV/AIDS. These issues include:
Social Environments
1. Legal System
There are many important legal issues that affect people who live with HIV/AIDS. These include:
People with HIV/AIDS are encouraged to have certain legal documents in place, including a will, a living will, a power of attorney, a health care directive and, in some cases, a deed of committee.
The availability of accessible and affordable legal services is limited. While legal aid is available to people with low incomes, the eligibility requirements are restrictive. Only those individuals with very low incomes are able to obtain legal aid; for example, for one person the monthly income cut-off is less than $1000. Furthermore, access to legal aid is becoming even more difficult since the BC government cut $6 million from the budget of the Legal Services Society in February 1997. For people living with HIV in need of legal advice who do not qualify for legal aid, the options are limited: a private lawyer or a community advocacy organization with limited capacity to deal with legal issues. Private lawyers are expensive, although there are some law firms who tailor their fees to meet the income level of the client.
The 1998 Supreme Court of Canada decision in R. v. Cuerrier held that individuals aware of their HIV-positive status may be found guilty of a criminal offence if they do not disclose their HIV status to a partner before having unprotected sex. This decision has created an urgent need for education, both for people living with HIV and also for a myriad of service providers such as health care workers, counsellors and therapists for whom the decision will have repercussions in areas such as confidentiality and duty to warn.
New legislation pertaining to guardianship has been promised for some time and will have an impact on individuals living with HIV/AIDS.
Although not able to offer members legal advice, BCPWAs Individual Advocacy Services Department can offer assistance, including representation, with a wide range of quasi-legal issues, including residential tenancy, BC Benefits, Canada Pension and Canada Disability Pension, Employment Insurance, wills and estates, guardianship and representation, and many others.
Eight percent of CHRP participants received legal assistance from an agency, group, organization or individual at least once in the two weeks prior to being interviewed.
Education regarding legal issues is important and is the responsibility of all agencies serving people with HIV/AIDS. In conjunction with legal issues, many agencies are also in need of expertise and resources to develop policy and ethical guidelines related to many aspects of HIV/AIDS.
2. Correctional System
Although the mandates of the federal and provincial corrections and forensic psychiatric services extend throughout the province, service provision is concentrated in the lower mainland. Corrections and forensic psychiatric services are not physically located in Vancouver (with the exception of the Vancouver Pretrial Services Centre and the Forensic Psychiatric Outpatient Clinic). However, offenders use the HIV/AIDS programs and services provided by Vancouver hospitals (primarily St. Pauls) and community-based agencies such as AIDS Vancouver and BCPWA. Many offenders, especially those who serve short sentences in BC correctional institutions, live in Vancouver prior to and after incarceration and use other services provided by the community, such as income assistance, housing and mental health care. Most of the halfway houses to which inmates from federal institutions in the Fraser Valley are released are in the greater Vancouver area. It is for these reasons that corrections services are included in this strategic plan.
Planning must include provision for the medical and the psychosocial support needs of people in correctional institutions and on supervised community release. Serious efforts to implement effective harm reduction and prevention programs must be increased in an attempt to stem the HIV epidemic. Without an effective and aggressive general plan to standardize and improve all current facets of HIV/AIDS care in all institutions, there will be staggering increases in the number of seropositive inmates living in and being released from prisons.
a. Federal Corrections
The federal system is responsible for offenders serving sentences of two years plus a day. All male offenders reside in federal institutions located in the Fraser Valley, with the exception of one institution near Victoria. Federal female offenders are provided with care and custody through a ministerial agreement with BC Corrections and reside at the British Columbia Correctional Facility for Women in Burnaby.
Voluntary nominal (i.e., not anonymous) testing for HIV is offered to every offender upon intake, at the commencement of the sentence, and again upon transfer to other institutions during incarceration. As well, an inmate can present him or herself at any time during their sentence for testing.
Currently, all offenders are offered care and treatment on a voluntary basis which is in accordance with the BC Centre for Excellence in HIV/AIDS "Therapeutic Guidelines for Care and Treatment". All offenders who are HIVpositive are provided with periodic consultant appointments as follow-up for care and treatment, in collaboration with the team of specialists at St. Pauls Hospital. Psychological support is available in all federal correctional settings on request or by referral from health services staff.
In the Correctional Services of Canada (CSC), the requirements for vitamin and nutritional supplements are reviewed on a case by case basis with the health care team and consultants from St. Pauls Hospital.
Offenders can access treatment and medications through two distribution programs: directly observed therapy or self directed administration. This is negotiated and provided at the choice of the offender.
Each offender is assessed and presented individually to the National Parole Board for possible compassionate release once they have reached the end-stage of HIV/AIDS disease.
CSC reports that harm reduction activities such as bleach and condom distribution, as well as peer counseling and methadone maintenance programs, are fully supported in BC federal correctional facilities. Quarterly routine audits are completed to ensure that adequate supplies of quality products are discreetly available to all offenders at all sites.
b. BC Corrections
All offenders in this system are serving sentences that are two years less a day. Long-term care of seriously ill female prisoners will have to be addressed; otherwise, chronic care needs will be minimal in BC corrections facilities. Those offenders who are incarcerated during the terminal stage of AIDS may be eligible to receive a compassionate discharge and make use of medical facilities in the community. Those offenders who are not discharged and require acute medical care are transported to a local hospital. The HIV/AIDS program at St. Pauls Hospital has treated several provincial inmates in the acute or terminal stages of AIDS.
None of the provincial facilities in BC has an accredited medical facility and it is not part of any plan to create "hospitals" within the BC corrections system. Inmates requiring hospital-type medical care will continue to be referred out to local hospitals. Given the expectation of a dramatic increase in HIV among the inmate population in the coming years, regional health boards in areas where BC corrections facilities exist must be aware that the presence of these facilities in their areas will have an effect on regional hospital resources.
c. Community Corrections
Community assessments are completed on every conditionally released federal and provincial offender. Probation and parole officers assess the available personal and community support and police and community resources. Issues addressed range from housing and substance use to medical needs. If the offender discloses that he/she is HIV-positive, resources such as AIDS Vancouver, BCPWA, and St. Pauls Hospital may be mobilized. However, there is currently no funding for the services provided by community agencies to released offenders in transition between institution and community, and this has been identified as one of the most serious gaps in service. As well, probation and parole officers and halfway house staff need training and education regarding the resources available to persons with HIV/AIDS.
d. Forensic Psychiatric Services
Inmates requiring psychiatric assessment or mental health services may be placed with Forensic Psychiatric Services. Patients at FPS who become ill with HIV/AIDS-related conditions must be transferred in order to receive acute care.
e. HIV Testing
All correctional facilities routinely offer HIV counselling and testing on a voluntary basis to all offenders upon entry to the system. In federal centres, a confidential nominal testing procedure is offered by health services staff with extensive pre- and post-test counselling. Anonymous testing by outside agencies allows maximum access to testing and is currently being offered on a trial basis in some provincial corrections facilities. In the BC forensic and correctional system, some pre- and post-test counselling is provided by nurses and physicians; however, anecdotal evidence suggests that most patients do not receive adequate pre- and post-test counselling.
f. Nutritional Counselling and Psychological Support
The responsibility for running alcohol and drug counselling programs within provincial correctional facilities lies with BC corrections. Mental health care is supplied to inmates of BC correctional facilities by Forensic Psychiatric Services and locally contracted psychiatrists and psychologists. FPS provides counselling through treatment nurses, physicians and psychologists on staff.
Provincial corrections and the Forensic Psychiatric Institute provide inmates with HIV/AIDS nutritional services and counselling, as well as vitamin and nutritional supplements and extra meal portions when needed. In federal corrections, the requirements for vitamin and nutritional supplements are reviewed on a case by case basis with the health care team.
Psychological support is available in all federal corrections settings on request or by referral from health care services.
g. Community Interfaces
Federal and provincial corrections plan to continue to provide access to community groups in the HIV/AIDS field to visit and provide services to offenders. In provincial institutions, these include BCPWA, clergy, native elders and public health nurses who provide resource information and psychological and emotional support. Educational events sometimes allow offenders to obtain information anonymously. In some institutions, support groups have been established. In federal institutions, public health nurses do not provide services as yet, but if anonymous testing were to be implemented, this would change. AIDS Vancouver and BCPWAs Prison Outreach Project do establish and support peer counselling programs, education fairs, educational programs and individual support as requested in federal institutions. However, neither federal nor provincial corrections provide funding to these external agencies to cover transportation and other related costs of providing these programs.
h. Community Input
There are already many processes in place in the forensic and correctional system for consumer input; for example, the Patient Concerns Committee at FPS, the Office of the Ombudsman, the BC Council on Human Rights, the BC Civil Liberties Association, the Division of Investigation, Inspection and Standards, citizens advisory groups in both federal and provincial institutions, the federal investigator, and various inmate committees. There is also communication with families and personal physicians by staff in forensic services and corrections.
i. Education
A health promotion teaching program was developed as a cooperative effort between federal and provincial corrections and Forensic Psychiatric Services. It was intended that all agencies would be using this program. The basics of health and hygiene, including STDs and HIV, were to have been covered in an 18-module format which was designed to reach the particular population in an effective manner. The program was run a couple of times in a few institutions and then never used again. A similarly developed program originated out of the accepted recommendations of the ECAP Report. Through the combined efforts of federal inmates and community AIDS workers and advocates, this program passed the pilot project and was printed and distributed. However, in British Columbia it was deemed by the Directors of Health Care to be insufficient for inmate training. The manual was then cut down and rearranged, and has only been taught in two institutions to two inmate groups.
After diagnosis of HIV infection, education and counselling are offered to each individual patient/offender as part of the treatment program, though there are reports that such service is inconsistent across the system.